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View the documentAppendix: B
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APPENDIX A

Review of the Social Security Administration's
Disability Decision Process Research




STUDY MANDATE


     The study will review and provide advice on the scope of work, design, content of the survey, and the approach and scientific methods of completed and planned research as the Social Security Administration (SSA) develops the new disability decision process. The study will focus on the population 18­69 years of age. Although the committee is given latitude in setting its own agenda and designing its plan of work, the topics it explores will include:

  • Review of the research plan and timeline for developing a new decision process for disability;
  • Review of the preliminary design of the Disability Evaluation Study (DES) research efforts, the scope of work for the DES, and the design and content of the survey, as proposed by the survey contractor, as well as SSA's plans to integrate the decision method and DES research effort, identifying statistical design, methodological and content concerns, and other outstanding issues;
  • Examine the results of completed research including research into existing functional assessment instruments and subsequently identified research for SSA's redesign efforts, and provide advice for adopting or developing functional assessment instruments or protocols for the redesigned disability process and the DES in particular; and
  • Assess the results and findings of the research undertaken by SSA, comment on future research proposals, and offer advice on the analysis of the consequences of alternative disability determination processes. Some of the topic areas that might be considered include functional assessment of work-related limitations of physical and mental impairments; disability decision processes (including screening mechanisms); testing and validating decision processes for determining disability; and age, education, and work experience.







 


 






 

 

 

 

 

 

 

APPENDIX B


Workshop on Survey Measurement of Work Disability: Challenges for Survey Design and Method

Committee to Review SSA's Disability Decision Process Research
National Academy of Sciences/Institute of Medicine
Holiday Inn Georgetown, Mirage I
2101 Wisconsin Avenue, N.W., Washington, D.C.
May 27­28, 1999


WORKSHOP AGENDA

Thursday, May 27


9:00­9:15 a.m. Welcome and Introduction
Dorothy Rice, Chair
9:15­9:30 a.m. Welcoming Remarks
Jane Ross, Deputy Commissioner, SSA


SESSION ONE
9:30­10:30 a.m. Overview of the Two Background Papers:
Opportunities for Methodological Research on Survey Measures Related to Disability
Elizabeth Badley, Alan Jette, and Nancy Mathiowetz
Contributor: Allan Sampson
     An examination of the various conceptual models of disability and the disablement process and their ability to address SSA's disability program requirements.
  • The challenges related to the translation of conceptual models to valid and reliable questions which can be administered to the general population.
  • The identification of the coverage, nonresponse, and measurement error properties of current measures of work disability.
  • Potential problems in cross-walking among measures of disability collected in a variety of settings and under varying survey conditions.


SESSION TWO
10:45 a.m.­12:00 p.m. Implications of Different Concepts for Survey Measurement Problems
Discussion Leader: Robert Groves
Contributors: Ellen MacKenzie and Allan Hunt
  • How do the various conceptual models address the dynamic nature of disability and how do these models address SSA's disability program requirements?
  • How do the various conceptual models address the role of environment, adaptation, expectations, and perceptions?
  • What measurement gaps exist between the various conceptual models of disability and the current set of disability measures used in federal surveys?


SESSION THREE
1:00­2:00 p.m. Sampling, Accessing, and Measuring People with Disabilities
Discussion Leader: Colm O'Muircheartaigh
Contributors: Lawrence Branch and Ronald Kessler
  • To what extent do varying modes and methods of data collection facilitate participation among p~"sons with disabilities?
  • If access to a person with a work disability is limited (due to the interface between the survey design and the nature of the disability), how is the measurement of disability affected by the role of the proxy respondent--caregiver as respondent, other proxy respondent? Can tradeoffs be assessed between nonresponse and measurement errors?
  • What gaps exist in our knowledge of the relative impact of coverage, nonresponse, and measurement error on estimates of disability?


SESSION FOUR
2:00­3:00 p.m. Questionnaire Development Issues for Measures of Work Disability
Discussion Leader: Seymour Sudman
Contributors: Roger Tourangeau and Jack McNeil
  • In light of developments related to the integration of cognitive theory and survey methodology, how should measures of work disability be evaluated?
  • How does the dynamic nature of disability and the disablement process impact the measurement of work disability?
  • How is measurement affected by the role of the person providing the information--self-respondent, caregiver as respondent, or other proxy reporters?
  • To what extent should we look to statistical modeling related to scale reduction as a means for reducing the effects of measurement error?
  • How will the measurement of work disability in a variety of settings (the DES and other ongoing federal data collection efforts) impact SSA's ability to monitor the pool of people potentially eligible for disability benefits?
  • What research needs to be conducted to develop robust measures of work disability, and to address the gaps in our knowledge about the measurement error properties of current measures?


SESSION FIVE
3:30­5:00 p.m. Role of Environment in Survey Measurement of Disability
Discussion Leader: David Gray
Contributors: Sandra Berry and Lois Verbrugge
  • How is the measurement of work disability affected by environment, perceptions, and expectations?
  • Is there a differential impact of environment on the reporting of disability as a function of the role of the person providing the information--self-respondent, caregiver, or other proxy respondent?
  • What do we know about the measurement of the role of environment, expectations, and perceptions with respect to the various sources of survey error, specifically, nonresponse and measurement error?
  • What gaps exist in our knowledge of how to adequately measure environment and its impact on the measurement of work disability? What research needs to be conducted to address these gaps?
5:00­5:30 p.m. General Discussion
5:40­6:40 p.m. Adjourn--Reception for all attendees


Friday, May 28

SESSION SIX
9:00­10:30 a.m. Defining a Research Agenda
Discussion Chair: Dorothy Rice
  • What are the criteria for a "successful" measurement of functional capacity to work?
  • Feasibility and practicality of designing and administering (i.e., safety, cost, etc.) measures of functional capacity to work.
  • Technical issues of incorporating reliability, validity, sensitivity, and specificity in the context of SSA's disability decision process.
  • How can these measurement approaches be linked to work requirements in the context of SSA's disability decision process?
10:45 a.m.­12:00 p.m. General Discussion
Moderator: Robert Groves
12:00­12:15 p.m. Concluding Remarks
Dorothy Rice
12:15 p.m. Adjourn





 
 






 

 

 

 

 

 


APPENDIX C


Workshop on Survey Measurement of Work Disability: Challenges for Survey Design and Method

May 27­28, 1999


LIST OF PARTICIPANTS



Michelle Adler
Project Officer, DES
Office of Research, Evaluation, and Statistics
Social Security Administration
Baltimore, MD

Barbara Altman
Center for Cost and Finance Studies
Agency for Health Care Policy Research
U.S. Dept. of Health and Human Services
Rockville, MD

Elizabeth Badley
Director of the Arthritis Community Research and Evaluation Unit
Senior Staff Scientist and Epidemiologist
Arthritis and Immune Disorder Research Center
Toronto Hospital
Toronto, Ontario, Canada

Susan Baer
Social Security Administration
Washington, DC

David Barnes
Deputy Director
Division of Medical and Vocational Policy
Office of Disability
Social Security Administration
Baltimore, MD

Frederica Barrow
Social Insurance Specialist
Office of Policy
Social Security Administration
Baltimore, MD

Sandra Berry
Director
Survey Research Group
RAND Corporation
Santa Monica, CA

Howard Bradley
Research Analyst
Office of Research, Evaluation, and Statistics
Social Security Administration
Baltimore, MD

Ronald Brookmeyer
Professor of Biostatistics
School of Hygiene and Public Health
Johns Hopkins University
Baltimore, MD

Lawrence Branch
Research Professor
Center for the Study of Aging and Human Development
Duke University
Durham, NC

Paul Burgan
Medical Officer
Social Security Administration
Baltimore, MD

Carole Chrvala
Senior Program Officer
Institute of Medicine
National Academy of Sciences
Washington, DC

Rex Cowdry
National Association of Mental Illness
Arlington, VA

Gerben DeJong
Director
National Rehabilitation Hospital Research Center
Washington, DC

Virginia A. de Wolf
Statistician
Statistical Policy Office
Office of Information and Regulatory Affairs
Office of Management and Budget
Washington, DC

Chris Dlugozima
Intern
Bureau of Labor Statistics
U.S. Department of Labor
Washington, DC

John Drabek
Economist
Office of Disability, Aging, and Long Term Care Policy/ASPE
U.S. Dept. of Health and Human Services
Washington, DC

Janice Dykacz
Mathematical Statistician
Social Security Administration
Baltimore, MD

Lynn Elinson
Senior Research Analyst
WESTAT
Rockville, MD

James L. Esposito
Social Psychologist
Bureau of Labor Statistics
U.S. Department of Labor
Washington, DC

Jacob Feldman
Senior Fellow
Center for Health Affairs
Project HOPE
Bethesda, MD

Edwin A. Fleishman
President
Management Research Institute, Inc.
Bethesda, MD

Marshal Folstein
Chairman and Professor of Psychiatry
Tufts University School of Medicine
Psychiatrist-in-Chief
New England Medical Center
Boston, MA

William Frey
Senior Research Associate
WESTAT
Rockville, MD

Howard Goldman
WESTAT
Rockville, MD

David Gray
Research Professor
Washington University School of Medicine
St. Louis, MO

Mauray Green
Survey Specialist
National Science Foundation
Arlington, VA

Brian Greenberg
Assistant Division Chief
Manufacturing and Construction Division
Bureau of the Census
U.S. Dept. of Commerce
Washington, DC

Liberty Greene
University of Maryland
College Park, MD

Robert Groves
Program Director and Research Professor
Survey Research Center
University of Michigan
Director
Joint Program on Survey Methodology
University of Maryland
College Park, MD

Thomas W. Hale
Economist
Bureau of Labor Statistics
U.S. Department of Labor
Washington, DC

George E. Hall
Slater Hall Group
Bernan Associates
Washington, DC

Pamela Hall
Research Associate
American Institutes for Research
Washington, DC

Rosanne Hanratty
Team Leader
Disability Process Redesign Team
Social Security Administration
Baltimore, MD

Gerry E. Hendershot
Special Assistant to the Director
National Center for Health Statistics, CDC
U.S. Dept. of Health and Human Services
Presidential Bldg., Rm. 850
Hyattsville, MD

John Hennessey
Mathematical Statistician
Office of Research, Evaluation, and Statistics
Social Security Administration
Timonium, MD

Maria Hewitt
Senior Program Officer
Institute of Medicine
Washington, DC

Holly A. Hollomon
Research Analyst
WESTAT
Rockville, MD

Jianting Hu
Economist
Office of Research, Evaluation, and Statistics/DER
Social Security Administration
Washington, DC

H. Allan Hunt
Assistant Executive Director
W.E. Upjohn Institute for Employment Research
Kalamazoo, MI

Alan Jette
Dean and Professor
Sargent College of Health and Rehabilitation Sciences
Professor of Social and Behavioral Sciences
School of Public Health
Boston University
Boston, MA

William Kalsbeek
Director
Survey Research Unit
Professor of Biostatistics
University of North Carolina
Chapel Hill, NC

David W. Keer
Program Specialist
Research Sciences Division
National Institute on Disability
U.S. Dept. of Education
Washington, DC

Cille Kennedy
Asst. Director for Disability Research
Division of Epidemiology and Services Research
National Institute of Mental Health
National Institutes of Health
Bethesda, MD

Ronald Kessler
Professor of Health Care Policy
Harvard Medical School
Principle Investigator
National Comorbidity Study
Boston, MA

Kevin G. Kinsella
Commission on Behavioral and Social Sciences and Education
National Academy of Sciences
Washington, DC

Corrine Kirchner
Director
Policy Research and Program Evaluation
American Foundation for the Blind
New York, NY

Mary Grace Kovar
Vice President, Research
National Opinion Research Center (NORC)
Washington, DC

Rebecca Lucchesse
Senior Project Assistant
Institute of Medicine
National Academy of Sciences
Washington, DC

Ellen MacKenzie
Professor of Health Policy and Management
School of Hygiene and Public Health
Johns Hopkins University
Baltimore, MD

Jennifer H. Madans
Associate Director, Science
National Center for Health Statistics, CDC
U.S. Dept. of Health and Human Services
Hyattsville, MD

Carla E. Maffeo
Vice President
WESTAT
Rockville, MD

Joyce Manchester
Staff Economist
Social Security Advisory Board
Washington, DC

Catharine Maslow
Director
Managed Care Initiative
Alzheimer's Association
Washington, DC

Nancy Mathiowetz
Assistant Professor
Joint Program in Survey Methodology
Adjunct Assistant Research Scientist
Institute for Social Research
University of Michigan
College Park, Maryland

John L. McCoy
Consultant
Vienna, VA

John M. McNeil
Statistician
U.S. Bureau of the Census
Washington, DC

Stephen C. Messer
Research Scientist
WESTAT
Rockville, MD

Darlene Montemarano
University of Maryland
College Park, MD

L. Scott Muller
Economist
Office of Research, Evaluation, and Statistics
Social Security Administration
Baltimore, MD

Robert S. Murphy
Senior Study Director
WESTAT
Rockville, MD

Kathleen Nolan
Research Associate
Institute of Medicine
National Academy of Sciences
Washington, DC

Mark O'Donnell
Disability Program Analyst
Disability Process Redesign Team
Social Security Administration
Baltimore, MD

Paul O'Leary
Social Security Administration
Washington, DC

Colm O'Muircheartaigh
Vice President for Statistics and Methodology
National Opinion Research Center
Professor
School of Public Policy Studies
University of Chicago
Chicago, IL

Donald Patrick
Professor
Department of Health Services
School of Public Health and Community Medicine
University of Washington
Seattle, WA

Suzanne Payne
Research Analyst
Social Security Administration
Washington, DC

Harold Pincus
Deputy Medical Director
Director of the Office of Research
American Psychiatric Association
Washington, DC

Dorothy Rice
Professor Emeritus
Department of Social and Behavorial Sciences
Institute for Health and Aging
University of California at San Francisco
San Francisco, CA

David Rodbard
Managing Research Scientist
American Institutes for Research
Washington, DC

Jane Ross
Deputy Commissioner for Policy
Social Security Administration
Washington, DC

Mary Ross
Consultant
Washington, DC

Kalman Rupp
Senior Economist
Office of Research, Evaluation, and Statistics
Social Security Administration
Washington, DC

Thomas Rush
Social Science Research Analyst
Office of Research, Evaluation, and Statistics
Social Security Administration
Baltimore, MD

Allan Sampson
Professor and Chair
Department of Statistics
University of Pittsburgh
Pittsburgh, PA

Lorraine Smith
Disability Policy Analyst
Office of Research, Evalution, and Statistics
Social Security Administration
Baltimore, MD

Edward J. Spar
Executive Director
Council of Professional Associations
on Federal Statistics (COPAFS)
Alexandria, VA

Seymour Sudman
Walter H. Stellner Distinguished Professor of Marketing
Deputy Director and Research Professor
Survey Research Laboratory
University of Illinois at Urbana-Champaign
Urbana, IL

Cynthia Thomas
Project Director
Other Disabilities Programs
WESTAT
Rockville, MD

Roger Tourangeau
Senior Methodologist
Gallup Organization
Rockville, MD

Joan L. Turek
Economist
Office of the Asst. Secretary, Planning and Evaluation
U.S. Dept. of Health and Human Services
Washington, DC

Denny Vaughn
Research Analyst
Social Security Administration
Washington, DC

Lois Verbrugge
Distinguished Senior Research Scientist
Institute of Gerontology
University of Michigan
Ann Arbor, MI

Peter M. Wheeler
Associate Commissioner for Research, Evaluation, and Statistics
Social Security Administration
Baltimore, MD

Andy White
Acting Director
Committee on National Statistics
Commission on Behavioral and Social Sciences and Education
National Academy of Sciences
Washington, DC

Chris Wise-Mohr
Senior Analyst
National Science Foundation
Arlington, VA

Bernard Wixon
Policy Analyst
Social Security Administration
Washington, DC

Gooloo Wunderlich
Senior Program Officer
Institute of Medicine
National Academy of Sciences
Washington, DC

Martynas Ycas
Director
Division of Program Studies
Office of Research, Evaluation, and Statistics
Social Security Administration
Washington, DC

Edward Yelin
Professor of Medicine and Health Policy
Department of Medicine
Director
Arthritis Research Group
Institute for Health Policy Studies
University of California atSan Francisco
San Francisco, CA

Robert W. Young
Administrative Law Judge
Social Security Administration
Bethesda, MD